A Kansas City couple is facing a heartbreaking battle to save their newborn twins, Baby Eli and Easton Reed, who were recently diagnosed with Spinal Muscular Atrophy (SMA), a rare genetic disease. The treatment for their condition is estimated to cost a staggering $4 million, with each medication alone costing $2.1 million.
The news of their sons’ diagnosis has been devastating for the parents, who describe the situation as a nightmare. SMA is a disease that causes muscle weakness, impacting basic movements like crawling, walking, and sitting up. The drug Zolgensma is a potential life-saving treatment for the twins, but its high cost has posed a major financial challenge for the family.
To add to their struggle, the parents’ insurance no longer covers the medication, leaving them with a hefty financial burden. The hospital where the babies are receiving treatment is actively seeking alternative solutions to help ease the situation. Despite their efforts, the family’s appeal to have their insurance cover the gene therapy was denied.
In a desperate bid to save their sons, a GoFundMe campaign has been launched to raise funds for the twins’ treatment. Despite the challenges, the community has rallied around the family, with over $260,000 already donated towards their goal of $4.2 million. The Reeds are determined to do whatever it takes to secure the necessary funds and provide the best possible care for Baby Eli and Easton.
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